Being diagnosed at 52 with Young Onset Parkinson's Disease (YOPD) was a game changer. In December 29, 2018, I had just been diagnosed with Parkinson's.  Upon walking out the door, the doctor handed me a pamphlet and a “see you in four months."  We were devastated and had no idea what to do next.

 

I now know that a little bit of empathy would have gone a long way. If not for my husband, Lee; my boxing group's leader, Denise (pdboxing.org); and, my mentor Sara, who I met during a boxing class, I would NOT have gotten as far as I have.

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After a rough start, including taking too much Dopamine, a doctor switch and a lot of anxiety attacks later, I started boxing, riding horses, cooking, gardening and decorating my home. The funny part is that I never had an interest in any of these things prior to the diagnosis  (except my love for horses).

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I dedicate this blog to those of you who have experienced a diagnosis that lacked empathy, dignity and respect. Know there is hope. Know that people care. Know that loving & living with the disease is possible. 

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